We have recently completed research that shows that shortfalls in the care system deny spinal injured people an independent life. Having heard numerous stories about insufficient care hours over the years and with a lack of any research in to this area, we conducted a survey asking spinal injured people about their care packages. Nearly 40% felt that their care needs are not being met by relevant UK authorities and, as a result were prevented from living independently. Furthermore, there was a strong theme of anxiety over the future of care packages given that 85% of care hours are funded by Local Authorities, the NHS and the Independent Living Fund (ILF), all of which are subject to funding cuts or restructuring.
“[My care package] only allows me enough time to leave the house to go out for a coffee or do some shopping on one morning a week, so that is the only time I leave the house. [I] only have help for a shower once a week.”
(56 year old female with T10 complete spinal cord injury).
“I have no allowance for social interaction or activities”
(45 year old female with a T9 incomplete spinal cord injury).
Download the full report here.
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