I sustained my Spinal Cord Injury 13 years ago. I have a rare condition called Cavernoma’s and one of my Cavernoma’s bled in my spinal cord which resulted in a T6 Complete SCI.  I spent seven months in a general hospital’s rehabilitation ward. When I was discharged, I had to learn so many things that could have been alleviated if I had more peer support. Once I was settled and had my life back on track, I knew I wanted to be involved in helping newly injured people. Sometimes, the rehab ward would ask me to come and support a newly injured patient. I really enjoyed helping others!

I heard about the InstructAbility course through Aspire so completed my Level 2 Gym Instructor and Level 3 Exercise and Disability as I was keen to encourage disability into the fitness industry. After my InstructAbility course the role of Independent Living Advisor became available and I was so happy as this was the opportunity I so wanted.

Lindsay in her wheelchair

I started working as an Independent Living Advisor in the Stanmore Spinal Injury Centre in 2016. I usually work one day a week in the ward and a day remote sending referrals, emails to patients and reports to my manager.

Whilst on the ward I help with patient education sessions, speak to patients about Aspire’s services but mostly talk to patients about living a full life with a spinal cord injury. No questions are off limits! I try to reassure them about life after discharge and give them as much information to prepare them for the future. 

Each week is different, and it varies how many patients I see. I often get asked questions about personal care, equipment, finance, housing, welfare benefits, holidays, being a mum and coping. If I am unable to help I refer them to someone who can help. I have a help sheet that I email to each patient after I meet them with lots of useful information on, as I am aware it feels like information overload on the ward. I often get comments about how useful the patient’s find this as they continue to use it after discharge.

Independent Living

Living with Spinal Cord Injury

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